The Brutal Reality Check that is a Week and a Half of Normal Activity

What happens when someone with Chronic Fatigue Syndrome and a whole host of other invisible ailments tries to keep up with normal humans for a week and a half? Let’s find out!

Fatigue is not “Just Being Tired”

…and many people are capable of hiding chronic pain in the same way an injured animal might if there’s a wolf looking at them.

Dealing with the Inevitable Crash after “Over Doing It”

You know what’s hard about having a body that’s a constant disappointment? Having a brain that isn’t. I need a vast amount of intellectual stimulation or I am stir crazy but this is often pretty impossible to accomplish when my

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Dealing with Quarantine as a “Spoonie”

I must admit that when the Corona Virus hit the US it was at the worst time possible for me. After a year and a half “down” where I did almost nothing except go to the grocery and feed store

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Let’s Talk About Chronic Illness and Black Outs

Stress. Depression. Sleep deprivation. All these things and more can cause black-outs even without drinking or drug use.

Finding Purpose Again

So around Christmas I was feeling a little better physically and the brain fog had almost completely disappeared so I was anxious to be productive again. I accomplished nothing in 2019 which was driving me nuts. The New Year would

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What It’s Like When Your Brain Fails You & How to Cope

Brain fog, sudden memory loss, and other alarming short circuiting of the brain can be both alarming and frustrating…

Keeping Hope at the Sight of More Negative Test Results

Another battery of tests has revealed very little and I am wondering where to go from here..

Ah, Rejection, it’s Not Any Better When it’s Medical

It’s been a frustrating few weeks. My brain fog has lifted and my mind is absolutely whirring at top speed. I can’t slow down for a second, not even to breathe, as I think of more things I need to

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Good News! I am Going Forward with Testing!

Sometimes going to a new doctor can be a real nail biter if you’re used to getting the run around.